We are grateful for the opportunity to provide input to the Trans-National Institutes of Health (NIH) ME/CFS Working Group as they develop strategies to guide NIH’s research efforts and priority setting for research on ME/CFS. Our mission at the Stanford Chronic Fatigue Syndrome Research Center is to discover causes, a molecular diagnosis, and treatment options for ME/CFS. Through our research efforts, collaborations with the ME/CFS research and clinical community, and extensive engagement with patients, we have defined several elements of importance for future ME/CFS research programs.
We are excited to work with the Open Medicine Foundation (OMF) to help blaze a new trail in ME/CFS research. Dr. Robert Naviaux and his team at the University of California, San Diego recently completed a metabolomics study of over 80 patients with ME/CFS and normal controls in collaboration with Dr. Eric Gordon and his team in northern California. The results were so exciting that we have expanded our pursuit and have launched a validation study in a completely independent group of over 100 ME/CFS patients (already chosen and ready to go) and controls from across the US and Canada.
The UCSD Suramin Autism Study began with a new idea about the origins and treatment of autism in 2008. This new idea emerged from 20 years of clinical experience caring for children with genetic forms of mitochondrial disease, combined with new observations of a different kind of mitochondrial dysfunction in autism, and Dr. Naviaux’s long-standing interest in the connection between genes, environment, and metabolism in human health and disease.
UC San Diego researchers open first study of suramin in children with autism
Researchers at the University of California, San Diego School of Medicine have launched a clinical trial to investigate the safety and efficacy of an unprecedented drug therapy for autism. The phase 1 clinical trial, which is recruiting 20 qualifying participants, will evaluate suramin…